LifeStory by Olivia
Visit her blog “Champagne and Cologne”
I am an identical twin. My twin sister died at birth and I have always struggled with the idea of missing something I never truly knew. Her spine wasn’t formed properly, and my parents knew they would only be taking one of us home. They named her Lea Michele. Lea is my Mum’s middle name, and my Dad’s name is Michael. I grew up knowing that I had a “Guardian Angel”.
When I was 12 I found out I had congenital scoliosis. We had a nurse come into school and tell us about how, with scoliosis, there is a curvature of the spine, and a good way to detect it is to bend over and touch your toes, and if one side of your back is higher than the other, then you should get it checked out.
I went home that afternoon frantic. I told mum, and my bothers and sisters, and my dad. They all acted calm and collected but I later found out they had been concerned about this for a while too. One afternoon a few weeks earlier, I was reading on the front porch in the sun and was bent over my book, and my siblings noticed and showed my mum. So my coming home with this news probably wasn’t that shocking.
We made an appointment with the GP, which led to x-rays. Which led to a visit to the specialist.
I did have scoliosis, but not the conventional type where it is purely just a curvature. Congenital means “born with” – and the reason I was born with my scoliosis is because I had an extra vertebrae – but only on the left hand side. This extra half had a rib off of it too. Here I was, with extra spine when my twin died because hers wasn’t fully formed? Basically, my spine was straight until it hit this uneven patch, where is curved out at the bottom. The funny thing is, that my condition should have been so much more physically apparent, but because I was so into swimming training, my spinal muscles were so strong that they held me in place. My shoulders were level, and for someone with my condition it is usual for one shoulder to be much higher than the other.
So, we had to book in for surgery. I was lucky enough to have the best orthopedic surgeon at that point in time in WA as my doctor. The surgery would basically be two in one, and was expected to take about 10 hours. They would first remove the extra vertebrae and rib – but to get in there, they would have to remove the whole vertebrae and ribs directly above. I started with an extra half and now I am minus one! Then they would roll me over and put steel rods against my spine. These will stay in there forever. View full article »

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LifeStory by Holly Renee
Hey guys! I’ve been getting stories in all weekend! You’re all the best! I’ll be posting through out the week as more come in and I get myself organized. In the meantime, be sure to follow on Twitter and Facebook (links at the bottom of the page) and share this site with your blog followers!


